Finally...

So my counts have risen a little bit FINALLY! Today I went to see Dr. Wong and my WBC were up to 2.4 and my neuts went up to .7...thank God as both kids are sick and I have a sore throat....yikes!! I got the ok to go to the lake for a day or two this weekend so I'm excited about that...Scott and I are of course delving into a new home project...literally! We are hoping to build in the new community right beside ours called Quarry Park...we will be building our dream home, yay for us!! Things will be crazy so I gotta get my numbers up waaayyy more! Ha! I need to relax a bit more at home I think as I've been swelling up today and yesterday. Damn, just when I thought I could get back to normal...whatever that is!!

oxxo Vic

It's good 2 b home!

Hello all...sorry it's been so long since an update but the two kids are busy!! :) JJ's dayhome has holidays so when Scott's at work, Gramma Carla comes over, thank God as I can't even handle one now, let alone two! I went for my appt yesterday. My WBC were up to 2.2, neuts were up to 0.4, platelets and blood hadn't dropped super lots but I got them both....I was there for my 11.30 appt and left at 6! My God!!!!!! Anyway, I'm just so happy my WBC and neuts especially have gone up a bit. They weren't forever!! JJ has had a cold since Saturday, the day after I got home of course....egad!! I haven't seemed to have caught it yet thank goodness. Maybe it's because I'm still on so many drugs?! I will see Dr. Wong twice a week for quite some time he said...I had a huge nap today and got blood yesterday so I feel great tonight...Scott is out at Predator Bay hoping to get a ski in. I'm so glad to be here in the evenings etc. for him so he can just take Jett or do things he wants to do! I hope to be feeling back to my old self by Sept or beginning of Oct. at the latest so we can get back to some normalcy around here. I feel like I've missed sooo much because I had all these plans for the summer and now I'm a prisoner at home after the crappy hospital! Grrr...well, I know I need to be patient but it's now been 6 weeks (tomorrow) since I went into hospital. I expected, of course, to be perfectly better by now! I found out it takes months and months and months for recovery. I do have some wonderful contacts in my AA world though; Kristin in Swift and Penny and Shawn! Penny has been great, telling me everything her hubby went through a couple of years ago when he was diagnosed and I'm grateful for that! Thanks Penny!

Well all, take care and all the best...pray for working bone marrow people!!! xo Vic AND family!

Home now!

Hello all!

Well they sent me home without an immune system but I'm happy now...I was SUPER nervous about it as I do not want to go back with an infection but the hospital is a bug infested place so I'm probably better off here. I can't have a lot of visitors, obviously. I can't go anywhere with lots of people and ALWAYS wear a mask when I leave, BUT I'm happy to be home and so are the kids!

My counts are all still low, just like they were at the hospital and I go to see my doctor at the clinic twice a week...I take tons of meds at home, which I didn't think I'd be doing but I guess you gotta do it...Gramma Sherry and Grampa Hart are here so Scott is going out tonight for dinner and to see Social Distortion (a band we love) so I'm happy he gets a night out!

Please don't call lots etc. as I may be home but I still will be napping lots etc. I hope to see my numbers start going up in the next few weeks so keep your fingers crossed for me!

xo Vic

hello

No internet at the hospital, sorry people. At home today with a pass and they may be sending me home soon even though I am still neutropenic and have no immunity. I"m nervous to say the least. I thought I"d be healthier when I went home...anyway, I'll be in touch!! ox

numbers are the same...

I'm doing fine but I found out this afternoon my friend down the hall Maggie, not sure if I mentioned her previously, passed away. I have never met a more positive woman, other than my mom. She had lymphoma and was very sick and was in a coma for the past few days. She passed when her hubbie went to get a coffee...I remember my mom did the same thing when Les, Jeff and I went for lunch, that's when she passed. The nurses here are quite upset as she was such a great woman. She came in a few days before I did and when I used to go on my walks around the unit we'd chat passing in the hall or in her room. She was an amazing woman and I feel for her family; she had a 12 & 14 yr old. Anyway, that's my day today except that I had a great visit with Danette who was my mom's best friend back in high school...she is visiting from Nova Scotia and made a stop to see me. Great to see her!! Take care all....oxxo Vic

Get out of jail free card today!

I got back not to long ago from a great day at home with the fam. Scott and the kids picked me up at the hospital on the way back from the lake this morning and they dropped me off tonight about an hour ago. Great day and I felt even better than last weekend's visit. Still hard to leave for all involved but so nice to eat real food (Boosey, that chicken dish you made was SOOO good, I need the recipe!) have a real shower and hang out with the fam on the deck etc. Obviously because I have no white blood cells we can't go anywhere but at this point, I don't want to anyway. You all probably have no idea how nerve wracking it is for me to go home even...what if I catch something, what if I spike a temp there, etc. etc. It's never ending mind games...damn blood! I also didn't believe all the nurses and doctors who told me, everyday including today, how long it takes for counts to come up. I always thought, "yah, but not me though" like I'm some sort of Superhero or something?! I mean, I kinda am, but my blood maybe isn't?! Anyway, I really thought they would be up there so high, I would not catch any infections (had the blood bug and now sinus infect) and would beat all odds and be at home gloating because I am the poster child of what AA could look like. Sadly, it IS a very long process and I will likely be here for at least 6 weeks...sadly, this Wednesday is 5 already! Can you believe it?!

Enough of all that, here is what you are all waiting for, my counts. Although, you all must be getting as bored of the same-same as I am! Ha!

HMGB: 11.8

pltlts: 45

wbc:1.5

neutrophils: 0.2

It's the stupid neuts that are killing me...they are the part of the white blood cells that are a person's immune system so I really don't have one.

Alas, I am not being negative with this post people so please don't send me, "stay positive" emails, please!! I am very positive, just super bored!!!!!!

Love, moi

Well, not much to say...

Jorja and her cabin "boyfriend" Grady at the lake tonight! So cute!

...but if I don't, I may get emails! :) My wbc are at 1.8 today but my neutrophils are still dangerously low; 0.2. I had to get platelets today because my body just eats them up! I can't believe it but all the doctors and nurses say that platelets are always the last to come up with AA patients. Had some nice visits the last few days but it's quite tiring! I never really realized, especially when JJ is here, how tiring it is...I love seeing JJ but I always act a little bit better in front of her! Ha!

They are off to the cabin for the weekend. I guess she's driving up with Gramma and Tom in their minivan so she's super pumped to watch movies with the wireless headset. I'll just be happy when I get the call they've all arrived safely! :)